Other Information on Patient Supports

Created date:February 15th, 2018


Special child-rearing allowance

See http://www.mhlw.go.jp/bunya/shougaihoken/jidou/huyou.html

1.Purpose

To promote the welfare of children with physical or psychological illness by providing allowances.

2.Eligible persons

Guardians who are taking care of children younger than 20 years of age, with physical or psychological illness, at home.

3.Allowance

1st grade 51,100 Japanese Yen/month

2nd grade 34,030 Japanese Yen/month

4.Date of payment

The total allowance of the last four months are paid, annually, in April, August, and December.

5.Income limit

If the income of the recipient or his/her spouse and the support obligee are over the limit, the allowance is not provided. See the table found at

https://www.jspho.jp/general/others_support.html

6.Application procedure

Applications should be submitted to the local government of the patient’s residence.


Disabled child welfare allowance

If the income of the recipient or his/her spouse and the support obligee are over the limit, the allowance is not provided. See the table found at

See http://www.mhlw.go.jp/bunya/shougaihoken/jidou/hukushi.html

1.Purpose

To promote the welfare of disabled children and reduce their mental strain and physical burden by providing an allowance to severely ill children.

2.Eligible persons

Children younger than 20 years of age who need daily support at home because of their severe mental or physical illness.

3.Allowance

14,480 Japanese Yen/month

4.Date of payment

The total allowance of the last three months are paid, annually, in February, May, August, and November,

5.Income limit

If the income of the recipient or his/her spouse and the support obligee are over the limit, the allowance is not provided. Please see the table found at

https://www.jspho.jp/general/others_support.html

6.Application procedure

Applications should be submitted to the local government of the patient’s residence.

If patients recover from their illness, they are not eligible for the support.


Expense except for medical fees

Some costs related to health care, such as transportation expenses, can be applied to medical expense deductions on the final tax return.Consult the taxation office for more information.


Insurance

Fraternal insurance for childhood cancer survivors is operated by HEART LINK KYOSAI. For more information, see http://hartlink.net/


Core hospitals for childhood cancer care

Fifteen hospitals are chosen as core hospitals for childhood cancer care by the Ministry of Health, Labor, and Welfare. The consultation centers of these hospitals provide information on childhood cancer.

For more information, consult social workers or certified nurses in pediatrics at hospitals or see the website link below.

http://hospdb.ganjoho.jp/kyotendb.nsf/xpChildSearchTop.xsp


Family house

Accommodations near the hospital are available in some areas.

For more information, consult social workers or certified nurses in pediatrics at hospitals or see the website link below.

NPO Family House:http://www.familyhouse.or.jp/

McDonald House:http://www.dmhcj.or.jp/


Peer support group/patient advocacy group

Information on peer support groups and patient advocacy groups should be provided by social workers at hospitals. For more information, see the website link below.


Children’s Cancer Association of Japan http://www.ccaj-found.or.jp/

Network of peer support groups of childhood cancer survivors http://www.ccaj-found.or.jp/cancer_info/survivor_parents/#survivor

Network of peer support groups of childhood cancer patients http://ssj-gan.net/

NPO Ketsueki Joho Hiroba-Tsubasa (information platform for patients with hematological disorders) http://tsubasa-npo.org/


Education

Education at in-hospital school is essential for children with cancer. Hospital staff will provide such information.

Information on special needs education is shown at http://www.nise.go.jp/cms/1.html


Hospital clown

Hospital clowns have their activities at some hospitals.

For more information, see the website link below.

http://hospital-clown.jp/ and http://www.cliniclowns.jp